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Lyme Disease:
A Clear and
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Welcome to the Ticked Off and Fed Up, Inc. Website

What is Lyme Disease?

Lyme disease is a devastating neurological and rheumatological disease, caused by a tick bite, which robs its victims of memory, and can leave them with an inability to form sentences. Lyme disease leads to multi-symptom complications, including heart disease, joint swelling, fatigue, and a life of severe pain. In the midst of all this suffering, the medical community is ill-equipped to deal with the incapacitating disease, with victims often going to 20 or 30 doctors before a proper diagnosis is made. At that late stage, Lyme disease victims are often placed on long term IV therapy.

In Memorium - December 4, 2011 - Jeannette Eichelberger (Mamma Lyme)

We are sad to announce the passing of Jeannette of the Gettysburg TOFU Lyme Group. She died on Sunday, December 4, 2011 due to complications of Lyme Disease. She was known to our community and "Mamma Lyme". We will miss her greatly. Click on this link for more information about Jeannette and the funeral arrangements Click Here.

Breakthrough News

• Borrelia Culture Update - Latest News From Advanced Laboratory Services Regarding Our Revolutionary New Test
  Borrelia Blood Culture is Now Available for Clinicians - Advanced Laboratory Services - November 4, 2011
  "Advanced Laboratory Services is pleased to announce that the Borrelia Blood Culture is now available for clinical use in 48 states so far. We have already been accepting samples and reporting results!..."
  PDF File: Click Here
  
  
• Borrelia Culture Now Available to Evaluate Lyme Disease Patients - Advanced Laboratory Services - PRESS RELEASE Sharon Hill, PA, September 5, 2011
  "Research breakthrough promises a new Gold Standard in Lyme Disease testing. Lyme Disease blood testing has been notorious for its unreliability This has been responsible for misdiagnoses and inappropriate patient care, as well as confusion on the part of both patient and physician alike. Now, as a result of intensive research, Advanced Laboratory Services Inc. is able to offer what will rapidly become the new gold standard of Lyme tests, the Borrelia Culture..."
  PDF File: Click Here
  
  
• New Borrelia Culture Test - Faster & More Accurate - Researched Nutritionals® - Solutions for Life - September 5, 2011
  "September 5, 2011 Joe Burrascano, Jr., MD has announced a new lab test available for Lyme doctors to use in determining if Lyme is present. There is no need to wait for antibodies to form since this is a culture-based test. This should provide much faster and more accurate detection, and allow Lyme patients to receive treatment as soon as possible. Please read below for Dr. Burrascano's description of the new test:..."
  Website Link: http://www.researchednutritionals.com/information.cfm?id=255
  PDF File: Click Here
  

Current News

• Discover Magazine - Health & Medicine/Infectious Diseases
  Top 100 Stories of 2011 #90: Chronic Lyme Patients Validated - By Katie Palmer - January 5, 2012
  Patients with chronic fatigue syndrome and post-treatment Lyme disease syndrome (in which symptoms persist after antibiotic treatment) have spent decades fending off charges that their debilitating exhaustion and cognitive problems were simply imagined. But a study released last February provides tangible evidence that their conditions are real and distinct entities..."
  Website Link: http://discovermagazine.com/2012/jan-feb/90
  PDF File of the Web Page: Click Here
  
Website Link in Article - Schutzer Revealed the Marker Proteins:
http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0017287
PDF File of the Web Page: Click Here
PDF File of the Article in the Paper Version of the Magazine - Page 83: Click Here


• Remarkable Article of Interview with Dr. Lynn Margulis - Discover Magazine - April 2011
  "Syphilis, Lyme, and AIDS are all caused by symbiotic bacteria within our bodies as hosts. We can NEVER get rid of any of these diseases. When we pelt them with antibiotics they simply go into their circular form and find a place to hang out. This is part of our evolutionary process, whereby both good and bad bacteria use us, as we use them to function. She does not believe that HIV virus has anything to do with AIDS, nor does she believe syphilis can be cured with a shot of penicillin. Lyme will be in our bodies until we die. The only thing we can do is learn to live with it!! Let' s get this person on our tour list.."
  Website Link: http://www.lymemed.nl/wetenschap/312-Margulis-final.pdf - This PDF file of the article is on the LymeMed website
  PDF File of the Web Page: Click Here
  
  
• Tremor, Seizures and Psychosis as Presenting Symptoms in a Patient with Chronic Lyme Neuroborreliosis (LNB)
  Abstract - PubMed.gov - U.S. National Library of Medicine National Institutes of Health - Article by University of Zagreb, School of Medicine, Zagreb University Hospital Centre, Department of Internal Medicine, Zagreb, Croatia - January 2011
  "Lyme borreliosis is a multisystem disorder caused by Borrelia burgdorferi (Bb). Neurological symptoms such as lymphocytic meningoradiculoneuritis (Bannwart's syndrome), cranial neuritis (II,III,IV,V,VI), encephalitis, transverse myelitis are found in about 10% of cases during the second phase of the disease..."
  Website Link: http://www.ncbi.nlm.nih.gov/pubmed/21648354
  PDF File of the Web Page: Click Here

  See other Lyme-Related articles on our News Articles page: http://www.tickedoffandfedup.com/News_Articles.html
  

Stories from the Front: Our Struggles with Lyme

The following short clips are the stories and personal experiences shared by members of the Gettysburg Lyme Disease Support Group.
They were taken with the permission of Lyme victims who volunteered to tell their stories at the Gettysburg Lyme Support Group, which meets the first Sunday of each month in the Community Room, through the graciousness of the Gettysburg Hospital.

Click on the play button below the video clips, one at a time, for viewing. The approximate length of each video is listed next to the links. If you have trouble viewing the clips, download the latest version of Adobe Flash Player.

Bob's Story (6 minutes, 5 seconds) October 6, 2006		Joni's Story (1 minute, 58 seconds) October 6, 2006
Ken B.'s Story (4 minutes, 6 seconds) October 6, 2006		Rick and Diana's Story (3 minutes, 22 seconds) October 6, 2006
Ken M.'s Story (4 minutes, 20 seconds) October 6, 2006		Lovette's Story (7 minutes, 3 seconds) October 6, 2006
Frank's Story (1 minute, 41 seconds) October 6, 2006		Jeannette and Al's Story (4 minutes, 10 seconds) September 7, 2008

NOTICE: The information provided here is for informational, educational and entertainment purposes only. It is NOT intended to replace, and should not be interpreted or relied upon as medical or professional advice. We are victims of tick borne illnesses, and any advice from those in the medical profession are given as advice from their perspectives as patients themselves, and/or from treating a large number of patients, but NOT as medical advice. Your reading and/or using any information from this site means that you agree to the terms and conditions detailed in this disclaimer.